T1D Misdiagnosis

Understanding common queries and exclusive information about diabetes of any type.

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This Isn’t the Diabetes They Told Me I Had

Tara Mayo

July 13, 2025

Tara Mayo

July 14, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Meet T1D Author and Health Coach, Mark Brezzell

Erin Poche

July 5, 2025

Erin Poche

July 14, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Three Years. Two Pregnancies. One Missed Diagnosis.

Tara Mayo

June 22, 2025

Tara Mayo

June 23, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Meet Kelly Dawes, Advocate and Founder of Grownup T1Ds

Erin Poche

June 16, 2025

Erin Poche

June 23, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed: Danielle’s Fight to Protect Her Daughter

Julia Flaherty

June 1, 2025

Julia Flaherty

May 30, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Matthew’s Road to Answers: How Life Challenges Led to the Right Diagnosis

Julia Flaherty

May 4, 2025

Julia Flaherty

May 5, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed: A New Mother Fights for the Right Diabetes Diagnosis

Tara Mayo

April 21, 2025

Tara Mayo

April 23, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

The Diagnosis That Wasn’t: Mark’s 28-Year Journey to the Truth

Tara Mayo

April 13, 2025

Tara Mayo

April 11, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Eric Van Leeuwen’s Journey: From Misdiagnosis to Advocacy

Tara Mayo

April 5, 2025

Tara Mayo

April 4, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Two Sisters with T1D: Still One Misdiagnosed

Tara Mayo

March 22, 2025

Tara Mayo

March 24, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Fighting for the Right Diagnosis: How One Woman Discovered Her Type 1 Diabetes

Tara Mayo

March 16, 2025

Tara Mayo

March 21, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Type 2 Diabetes for Five Years: Nazak's Story

Ginger Vieira

March 1, 2025

Ginger Vieira

March 21, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Lua’s Diabetes Misdiagnosis: 7 Years of Frustration & Severe Symptoms

Ginger Vieira

February 22, 2025

Ginger Vieira

March 21, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Broadway Actor Kyle Banks & His Diabetes Misdiagnosis

Tara Mayo

February 17, 2025

Tara Mayo

March 21, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Type 2 Diabetes: A Journey to Understanding Type 1

Tara Mayo

February 16, 2025

Tara Mayo

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Type 2 Diabetes: Megan's Journey to a Type 1 Diagnosis

Tara Mayo

February 1, 2025

Tara Mayo

March 25, 2025

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Misdiagnosed with Gestational Diabetes & Type 2 Diabetes

Ginger Vieira

January 26, 2025

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Nearly Fatal Misdiagnosis with Type 2 Diabetes

Ginger Vieira

January 20, 2025

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Surviving a Type 2 Diabetes Misdiagnosis & Denial: Rebecca’s Story

Ginger Vieira

December 30, 2024

Ginger Vieira

March 25, 2025

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Actor, Author and Advocate Reneé Rayles

Erin Poche

December 23, 2024

Erin Poche

March 25, 2025

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Lydie’s Type 2 Misdiagnosis Story

Ginger Vieira

December 22, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

‍Misdiagnosed With T2D: Trapper’s Story of Persistence

Ginger Vieira

December 16, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Trying to “Reverse” Type 2 Diabetes with Extreme Diet & Exercise When You Actually Have Type 1

Ginger Vieira

October 26, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with T2D for 10 Years: Did Doctors Cause Her Retinopathy?

Ginger Vieira

October 19, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

‍Trying to “Reverse” Type 2 Diabetes When You Actually Have Type 1

Ginger Vieira

October 14, 2024

Ginger Vieira

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

DiabeticU: An All-in-One Diabetes Health Platform

Erin Poche

October 13, 2024

Erin Poche

March 25, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

A Diabetes Educator Fights for a Patient’s Correct Diagnosis

Ginger Vieira

September 23, 2024

Ginger Vieira

March 26, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Type 2 Diabetes and Epilepsy: A Cautionary Tale for Primary Doctors

Ginger Vieira

September 9, 2024

Ginger Vieira

March 26, 2025

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T’ara’s T2D Misdiagnosis Story

Ginger Vieira

August 26, 2024

Ginger Vieira

March 26, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Lance Bass Misdiagnosed with Type 2 Diabetes - He really has Type 1.5

Ginger Vieira

August 5, 2024

Ginger Vieira

March 26, 2025

T1D Guide T1D Strong News Personal Stories Resources T1D Misdiagnosis T1D Early Detection Research/Clinical Trials

Misdiagnosed with Prediabetes & Type 2 Diabetes at 24 Years Old

Ginger Vieira

August 3, 2024

Ginger Vieira

March 26, 2025

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Type 1 Diabetes Testing

Erin Poche

May 3, 2024

Erin Poche

March 27, 2025

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Misdiagnosis of Type 1 and Type 2 Diabetes

Laura Rogers

April 17, 2024

Laura Rogers

March 1, 2025

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Adult Onset Type 1 Diabetes: What You Need to Know

Erin Poche

April 7, 2024

Erin Poche

March 1, 2025

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Why is Type 1 Diabetes Not Being Diagnosed?

Laura Rogers

March 27, 2024

Laura Rogers

March 1, 2025

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DiabetesSangha’s Peter Friedfeld on his Misdiagnosis and Managing the Ups and Downs of T1D

Erin Poche

January 30, 2024

Erin Poche

March 27, 2025

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Trevor Williams – DiabetesMine Patients Voice Scholarship Winner and T1D Advocate

Erin Poche

December 14, 2023

Erin Poche

March 27, 2025

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Amy Tenderich –T1D Visionary and Founder of DiabetesMine Innovation Days

Erin Poche

December 8, 2023

Erin Poche

March 27, 2025

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T1D Misdiagnosis

Understanding common queries and exclusive information about diabetes of any type.

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Misdiagnosed for Years: Gary Rind’s Journey from Type 2 to Type 1 Diabetes

At 65, newly retired from a long career in finance and accounting, Gary Rind now leads a full life in Houston, Texas, traveling internationally, actively managing his diabetes, and meeting monthly with his local type 1 diabetes group. But his journey to this point wasn’t always easy.

Ginger Vieira

August 17, 2025

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Kennedy’s Type 1 Diabetes Journey and Her Lifesaving Alert Dog, Kona

The Berce family gained an incredible gift the year before their daughter, Kennedy, was diagnosed with type 1 diabetes. They didn’t know it at the time, but the Portuguese water pup they adopted would become a lifesaving alert dog.

Erin Poche

August 4, 2025

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Golfer with Type 1 Diabetes, J.J. Spaun, Wins U.S. Open

J.J. Spaun, a professional golfer living with type 1 diabetes, won the 2025 U.S. Open title, but his victory was not easy to come by. In 2018, Spaun was misdiagnosed with type 2 diabetes, and for several years, his health and game declined. After seeking a second opinion and receiving the correct T1D diagnosis, he began his comeback.

Julia Flaherty

August 2, 2025

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This Isn’t the Diabetes They Told Me I Had

In her mid-40s, Lynna Demay was the picture of health. She followed a strict vegan diet inspired by Dr. Joel Fuhrman’s Eat to Live, exercised daily, and felt stronger than ever. So when her A1C came back at 14.1 % and her blood sugar was over 300 mg/dL during a routine physical, she was stunned.

Tara Mayo

July 13, 2025

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Meet T1D Author and Health Coach, Mark Brezzell

Author Mark Brezzell shares his ‘Unexpected Journey’ with diabetes and how it inspired him to become a speaker and diabetes educator. After being misdiagnosed with type 2 diabetes, he now urges those newly diagnosed to ask questions, seek second opinions, and prioritize self-education.

Erin Poche

July 5, 2025

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Three Years. Two Pregnancies. One Missed Diagnosis.

Elisha was 26 and pregnant with her first child when she failed her oral glucose tolerance test (OGTT) and was diagnosed with gestational diabetes. She experienced the same high glucose levels during her second pregnancy. After more than three years of being told she had gestational or T2D, Elisha finally had the correct diagnosis: type one diabetes.

Tara Mayo

June 22, 2025

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Meet Kelly Dawes, Advocate and Founder of Grownup T1Ds

Kelly Dawes, a dedicated leader in the type 1 diabetes (T1D) community, has lived with the condition for 44 years. Her personal journey instilled in her a deep sense of empathy and a passion for supporting others. As the founder of the nonprofit organization, Grownup T1Ds, she offers vital resources that foster connection, reminding T1Ds they’re never alone in their experience.

Erin Poche

June 16, 2025

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Misdiagnosed: Danielle’s Fight to Protect Her Daughter

Danielle was diagnosed with diabetes during her junior year of college in 2009. Upon admission to the hospital, her A1C level measured 12.6%—equivalent to a dangerously high blood glucose level of 1,036 mg/dL. Based on this, the attending endocrinologist diagnosed her with type 2 diabetes (T2D). Years later, when Danielle’s daughter began showing similar symptoms, Danielle’s experience empowered her to advocate swiftly for immediate evaluation and treatment.

Julia Flaherty

June 1, 2025

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Matthew’s Road to Answers: How Life Challenges Led to the Right Diagnosis

Matthew Roze was misdiagnosed with type 2 diabetes (T2D) at 38 years old in 2021. It wasn’t until 2023, however, that he was diagnosed correctly.

Julia Flaherty

May 4, 2025

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Misdiagnosed: A New Mother Fights for the Right Diabetes Diagnosis

Morganne Linthwaite was 34 years old when she was finally diagnosed with type 1 diabetes (T1D) — after years of being misdiagnosed, dismissed, and forced to advocate for herself.

Tara Mayo

April 21, 2025

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The Diagnosis That Wasn’t: Mark’s 28-Year Journey to the Truth

When Mark was first diagnosed with type 1 diabetes (T1D) at 35 years old, he wasn’t even told what type of diabetes he had. But he was immediately started on insulin — both rapid-acting and long-acting — and sent home from the hospital with the message: “You’re going to have this for the rest of your life, and it’s only going to get worse.”

Tara Mayo

April 13, 2025

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Eric Van Leeuwen’s Journey: From Misdiagnosis to Advocacy

Eric Van Leeuwen was 29 years old when he received a life-changing phone call from his doctor. Until that moment, he hadn’t given much thought to his health. He felt fine — or at least, he thought he did. But in reality, his body had been sending him warning signs for months. The only reason he even went to the doctor was because his wife insisted he get a routine physical. That appointment led to unexpected bloodwork results that would forever change his life.

Tara Mayo

April 5, 2025

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Two Sisters with T1D: Still One Misdiagnosed

‍For three years, Justine lived with the wrong diagnosis. Despite having textbook symptoms of type 1 diabetes and a sister with T1D, she was told it was type 2, handed a prescription, and sent on her way. It took years of relentless advocacy, a sister’s support, and a nonprofit stepping in to finally get the right answers. But why did it take so long?

Tara Mayo

March 22, 2025

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Fighting for the Right Diagnosis: How One Woman Discovered Her Type 1 Diabetes

For years, Zorya did everything in her power to manage what doctors told her was type 2 diabetes — only to discover it wasn’t type 2 at all. It was type 1. This is her story of frustration, self-advocacy, and ultimately, finding the right diagnosis.

Tara Mayo

March 16, 2025

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Misdiagnosed with Type 2 Diabetes for Five Years: Nazak's Story

In the summer of 2014, Nazak Malekan, a data analyst and translator from Montreal, received news that would change her life. At 42 years old, she was diagnosed with type 2 diabetes. Unfortunately, it would take five years of advocating for herself to get the correct diagnosis: type 1 diabetes (T1D).

Ginger Vieira

March 1, 2025

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Lua’s Diabetes Misdiagnosis: 7 Years of Frustration & Severe Symptoms

At 42 years old, Lua has spent nearly half her life navigating the challenges of diabetes. But for seven long years, she was misdiagnosed with type 2 diabetes. The journey to the correct diagnosis was filled with medical confusion, frustration, struggle, and unwavering determination.

Ginger Vieira

February 22, 2025

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Broadway Actor Kyle Banks & His Diabetes Misdiagnosis

Performing on a Broadway stage is no small feat, requiring a blend of stamina, precision, and passion. For Kyle Banks, the founder of KylerCares, managing type 1 diabetes compounded the challenge—a condition that has become part of his story both on and off the stage.

Tara Mayo

February 17, 2025

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Misdiagnosed with Type 2 Diabetes: A Journey to Understanding Type 1

Kerry was misdiagnosed with type 2 diabetes at 31 years old. Her story is one of perseverance, resilience, and determination to bring joy back into her life—even in the face of a chronic illness.

Tara Mayo

February 16, 2025

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Misdiagnosed with Type 2 Diabetes: Megan's Journey to a Type 1 Diagnosis

Megan's journey with diabetes began during her first pregnancy at 18 years old. What started as a standard glucose tolerance test quickly became a life-changing (and frustrating) experience.

Tara Mayo

February 1, 2025

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Misdiagnosed with Gestational Diabetes & Type 2 Diabetes

Anna Nicolaou was misdiagnosed with gestational diabetes at 27 years old during her first pregnancy. She was misdiagnosed at age 30 during her second pregnancy and misdiagnosed again at 33 years old during her third pregnancy.

Ginger Vieira

January 26, 2025

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Nearly Fatal Misdiagnosis with Type 2 Diabetes

Steven Thompson’s A1c was 15 percent when he was misdiagnosed at 26 years old in 1991.This means his blood sugar levels were over 400 mg/dL every day.

Ginger Vieira

January 20, 2025

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Surviving a Type 2 Diabetes Misdiagnosis & Denial: Rebecca’s Story

Rebecca Dugas was misdiagnosed with type 2 diabetes in her mid-30s. Since then, she’s been through a lot—ER visits, side effects of type 2 drugs, and the consequences of diabetes denial.

Ginger Vieira

December 30, 2024

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Actor, Author and Advocate Reneé Rayles

Reneé Rayles, a leader in the T1D community, created the popular platform “Hey Type 1 Diabetes” to empower and support T1D individuals. Here, she shares her passion for diabetes education and transparency, her misdiagnosis with T2D, and her advocacy efforts to make insulin affordable for all.

Erin Poche

December 23, 2024

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Lydie’s Type 2 Misdiagnosis Story

In 2023, Lydie Pincemin was misdiagnosed with type 2 diabetes at 45 years old. Recent studies suggest that up to 40% of adults over 30 with type 1 diabetes are initially misdiagnosed as type 2 cases. Understanding that a T1D diagnosis can occur at any age is vital to receiving life-saving treatment.

Ginger Vieira

December 22, 2024

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‍Misdiagnosed With T2D: Trapper’s Story of Persistence

Trapper Haskins, musician, author and woodworker, was misdiagnosed with type 2 diabetes at 36 years old in 2013. He endured seven years of frustration with extreme exercise and severely restrictive diets trying to reverse type 2 diabetes (T2D) before he received an accurate diagnosis.

Ginger Vieira

December 16, 2024

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Trying to “Reverse” Type 2 Diabetes with Extreme Diet & Exercise When You Actually Have Type 1

At 43 years old, Ana Alvarez Pagola was misdiagnosed with type 2 diabetes while living in Argentina. Now, nearly 20 years later, Ana still remembers the year of confusion quite clearly.

Ginger Vieira

October 26, 2024

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Misdiagnosed with T2D for 10 Years: Did Doctors Cause Her Retinopathy?

In 2009, Mona Verma was misdiagnosed with type 2 diabetes at 36 years old in Toronto, Canada. By the time she was diagnosed correctly with type 1 diabetes in 2020 during the COVID-19 pandemic, she had endured a decade of very high blood sugar levels.‍

Ginger Vieira

October 19, 2024

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‍Trying to “Reverse” Type 2 Diabetes When You Actually Have Type 1

Griet De Schaepmeester was misdiagnosed with type 2 diabetes at 45 years old in 2024 — and this misdiagnosis wreaked havoc on her entire life for months. ‍

Ginger Vieira

October 14, 2024

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DiabeticU: An All-in-One Diabetes Health Platform

When Matthew Tremellen was diagnosed with type 2 diabetes at 47, he struggled to find essential resources to improve his condition. After failing to uncover an all-encompassing tool that assists with meal planning, exercise, carb counting, and inspiring tips, he decided to build his own—DiabeticU.

Erin Poche

October 13, 2024

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A Diabetes Educator Fights for a Patient’s Correct Diagnosis

Stepping around a doctor isn’t an easy decision for a nurse practitioner or diabetes educator. A nurse isn’t supposed to question a doctor’s diagnosis. Fortunately for a young man in Illinois, a diabetes educator found the courage and strategy to work around a stubborn doctor’s misdiagnosis.

Ginger Vieira

September 23, 2024

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Misdiagnosed with Type 2 Diabetes and Epilepsy: A Cautionary Tale for Primary Doctors

Robert Coombs was 27 years old when he was misdiagnosed with type 2 diabetes in 2007. Unfortunately, this diagnosis led directly to the misdiagnosis of a second condition. Both misdiagnoses are largely the result of new and experienced doctors making assumptions in the face of undiagnosed medical conditions.‍

Ginger Vieira

September 9, 2024

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T’ara’s T2D Misdiagnosis Story

At 25 years old, T’ara Smith was misdiagnosed with type 2 diabetes. She had an A1c of 15% and felt increasingly lousy for months before she went to her primary care doctor.

Ginger Vieira

August 26, 2024

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Lance Bass Misdiagnosed with Type 2 Diabetes - He really has Type 1.5

Even the rich and famous can be misdiagnosed with type 2 diabetes when they actually have type 1! Lance Bass — the 90s boyband pop star from N’Sync — recently shared that he’s been diagnosed with type 1 diabetes at 45 years old. A few years ago, though, he was diagnosed with type 2 diabetes after a bout with COVID-19.

Ginger Vieira

August 5, 2024

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Misdiagnosed with Prediabetes & Type 2 Diabetes at 24 Years Old

Emily Trantum was misdiagnosed twice. When Emily’s doctor first diagnosed her with prediabetes in 2011, she wasn’t exactly surprised. Several of her older family members had type 2 diabetes, including a grandparent, aunt, and uncle on her mother’s side. But the confusing part was this: Emily was only 24 years old. ‍

Ginger Vieira

August 3, 2024

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Type 1 Diabetes Testing

Diabetes mellitus—a chronic disease that occurs when the body can’t produce enough insulin to support the cells for energy—has many associated types and tests. With more than 133 million Americans living with diabetes and more cases escalating every day, it’s essential to differentiate between the various forms, assessments, and treatment plans for each.

Erin Poche

May 3, 2024

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Misdiagnosis of Type 1 and Type 2 Diabetes

Just as some children with type 1 diabetes are incorrectly assessed with the flu or some other viral infection, recent studies indicated that up to 40% of adults with type 1 diabetes are misdiagnosed with type 2 diabetes. These dangerous miscalculations and insufficient testing may lead to hospitalization with severe diabetic ketoacidosis, diabetic coma and even death.

Laura Rogers

April 17, 2024

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Adult Onset Type 1 Diabetes: What You Need to Know

There is a growing prevalence of adult onset T1D diabetes cases worldwide. As the autoimmune disorder (diabetes type 1) was often found in children and young adolescents, misdiagnosis of type 2 diabetes is often common in adults.

Erin Poche

April 7, 2024

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Why is Type 1 Diabetes Not Being Diagnosed?

Contrary to popular belief, type 1 diabetes does not happen exclusively during childhood. In fact, almost 50% of type 1 diabetes diagnosis arises in adulthood. Data from the UK Biobank shows that more than 40% of type 1 diabetes occurs after age 30 and that many patients are often initially diagnosed with type 2 diabetes.

Laura Rogers

March 27, 2024

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DiabetesSangha’s Peter Friedfeld on his Misdiagnosis and Managing the Ups and Downs of T1D

After a type 2 diabetes (T2D) misdiagnosis at age 55, Peter Friedfeld underwent two years of mismanagement and hardship until he finally received the correct diagnosis as a type 1 adult. The Lancet reports that up to 40% of adults might be misdiagnosed with type 2.

Erin Poche

January 30, 2024

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Trevor Williams – DiabetesMine Patients Voice Scholarship Winner and T1D Advocate

Battling the misperceptions of type 1 diabetes is another challenge T1Ds encounter. People of all ages, races, sizes, ethnicities, and lifestyles can have type 1 diabetes. Most importantly, the lack of awareness in emergency rooms around the country has led to dangerous misdiagnoses among T1Ds.

Erin Poche

December 14, 2023

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Amy Tenderich –T1D Visionary and Founder of DiabetesMine Innovation Days

The world needs trailblazers. Risk takers who see a problem and find a solution. Their vision takes existing ideas to new levels and empowers others to follow. The diabetes community is fortunate to have Amy Tenderich, DiabetesMine founder, who has used her experience to educate, open doors and elevate a needed change in diabetes healthcare and technology.

Erin Poche

December 8, 2023

T1D Misdiagnosis

T1D Misdiagnosis

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Amy Tenderich –T1D Visionary and Founder of DiabetesMine Innovation Days

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